Hours of care funded
A step for every child with a life-limiting condition in the UK.
From 17 – 23 June 2024 put your best foot forward and take part in the 99,000 steps challenge. With every step, every stride, every tread, you’ll be making a difference to the 99,000 children in the UK living with a life-limiting condition.
How the challenge works
Sign up, step up
Simply sign up – either on your own or as a team to get started. Once you've set up your fundraising page, you're good to go!
Get ready, get fundraising
Ask your nearest and dearest to sponsor you! Check out our helpful guides to make the most of your fundraising.
Put your best foot forward
Whether you walk or run, start your challenge on 17 June and complete your 99,000 steps in one week.
Every step counts for families like Oscar's
Every step and every penny raised will help children like Oscar, and the hospices up and down the country who care for them.
Oscar was born with quadriplegia cerebral palsy, a four-limb movement disorder. More recently in 2021 Oscar’s gut started to fail. He also had a burnout from dystonia, another movement disorder Oscar lives with, which affected his brainstem and cannot recover from this.
In 2019 as Oscar’s condition declined and his needs began to change, he was referred to Little Havens.
At Little Havens there is everything Oscar loves around him; the respite can be a fun time for Oscar on his good days or it can be a restful stay with round-the-clock care. The break is also a valuable time for the whole family giving them “a chance to reset.”
Mum, Adelaide, said “When we were first referred, I was horrified. I had this image of a hospice being very sad and was full of dread. I had Oscar and his little brother Jack with me and within minutes we soon realised it's a really happy place and not sad at all.”
Adelaide continued, “Little Havens have taken the time to get to know Oscar, he’s not just someone who can’t talk. At the hospice Oscar is just ‘Oscar’. It's important to Care Team that work with him that he's known for liking his Harry Potter, he's known for liking music. It's not about his medical condition and his medicines.
“It’s much more to us than respite, they help to get the best out of each day for Oscar. If he’s having a good day and really smiley and happy, they go outside because they know that’s something he loves and is important to him. They want to make Oscar happy, and that’s what Little Havens does for us as a family; nothing is impossible.”
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