Total Steps
0
Hours of care funded
0
A step for every child with a life-limiting condition in the UK.
15 - 21 June 2026
About the challenge:
With every step, every push forward, every leap, every movement, you can help change the lives of the 99,000 babies, children and young people in the UK living with serious illness.
Across the UK, 52 children's hospices provide vital care and support to children and their families. They are extraordinary places but right now, there simply isn't enough funding or staff to reach every family who needs that support.
This Children’s Hospice Week, take on the challenge of completing 99,000 steps in a week to help keep these vital services running for families today, tomorrow, and in the future.
Every step counts for families like Isaac's
Top image: Isaac enjoying the drums at Little Havens.
Bottom image: The Perry Family - Niall, Scarlett, Isaac, Riley and Lucy
Isaac was born with a condition called lymphatic malformation – something which thankfully remained stable for three years whilst he was on long-term antibiotics. However, things changed suddenly when he was diagnosed with Acute Lymphoblastic Leukaemia.
For three years, Isaac spent much of his life in hospital and after two episodes of septic shock, he lost his leg. His parents, Niall and Lucy, had to balance their time between the hospital and home, where siblings Riley and Scarlett needed them too.
It was during this time that a support worker suggested Little Havens children's hospice could help the family. At first, Niall wasn't sure what to expect but from the moment the family arrived, they could relax and enjoy time without questions or judgement.
"The kids loved it, especially the garden," he says. "For us, it was so nice to see them just being 'normal'."
Little Havens became a safe space for the family, somewhere that supported them in transition back to reality after years spent in hospital.
"Our first soft play, first swimming, first days out all happened here."
In September 2024, Isaac rang the bell to mark the end of his treatment. He's now back at school and thriving.
